Milton Keynes Children with Complex Needs Service

Address:
Milton Keynes Hospital, Standing Way
Eaglestone, Milton Keynes, MK6 5NG
United Kingdom

Telephone:
01908 724511

Milton Keynes Children with Complex Needs Service offers home care and medical supplies for children with complex needs.
Read more about community children’s nursing services

The service provides nursing care and support to families of children who have complex medical needs, palliative care needs, including end-of-life care, complex epilepsy, haemoglobinopathies, neurodisability and degenerative conditions, and the management of complex continence issues. A small respite provision is available within the team for the youngest children who are not eligible for social care respite or nursery provision.

The service:

  • Assesses the child’s needs and develops a care package accordingly
  • Liaises with other professionals involved in caring for the child
  • Gives advice and support
  • Reviews and monitors the child’s care on an ongoing basis
  • Provides medicines management
  • Provides a named nurse to coordinate individual children's care and for eligible children provides a telephone on-call service

The team comprises children's nurses, nursery nurses and a service administrator.

Eligibility criteria (who is the service for?)

The service is available to children who are registered with a Milton Keynes general practitioner (GP) or where there is an agreement in place with a neighbouring clinical commissioning group (CCG) to provide the service.

To use the service, individuals must be aged under 19, and meet one of the following three criteria:

  • Have a severe, unpredictable or complex medical condition, for example sickle cell disease and epilepsy, and/or disability or range of complex medical conditions that indicate a very high use of healthcare services.
  • Have a life-threatening or life-limiting illness where it is expected that they will not reach adulthood.
  • Have a long-term or complex condition which makes them medically unstable and requiring input from a health professional and/or regular hospital admissions.

Or:

  • Attend a special school in Milton Keynes
  • Have complex Epilepsy
  • Sickle Cell Disease and Thalassaemia
  • Require medical supplies
  • Have complex continence needs that require specialist input. 

How can someone be referred?

Children can be referred to the service by a parent, or any professional who feels that the child meets the criteria above.

Once the team has received information about the child, a community paediatric nurse will carry out an initial assessment. If the child is accepted onto the team caseload, a named nurse will visit them at the earliest opportunity.

Can I use NHS E-Referral (formerly Choose and Book) to arrange my first outpatient appointment?

NHS e-Referral is not applicable to this service.

Service times

The nurses are available from 9am to 5pm, Monday to Friday.
A 24-hour out-of-hours service is available for eligible children.

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Where can you find this service?