Welcome to Patient, Carer and Public Involvement at CNWL!

Experts by experience







Visit this page to find out what we do with your feedback!

Watch a short video (opens link) about involvement at CNWL.

CNWL’s Patient and Carer Involvement Team work with the public and anyone who uses our services to make sure that patients and carers have a say in how we do things. We do this because involving people with lived experience leads to better services and better health outcomes.

We support and advise teams across the Trust on how to involve patients and carers in local groups, activities, projects, staff recruitment interviews, local committees and staff training.

We run Trust-wide involvement groups, including the Carers’ Council and the Patient Involvement Forum, who advise on CNWL policies and service changes as well as designing and delivering events and publications.  Any CNWL service can send materials or questions to these groups for comment.   

We are supporting services to meaningfully involve patients and carers in Quality Improvement (QI) and helping to increase the numbers of people with lived experience involved in QI.

We look at all patient and carer feedback and help services use this to make local improvements.

We share good practice and innovative ideas about involvement across the Trust.  

There are many options, including:

  1. Joining a committee or group to advise on services
  2. Taking part in a Quality Improvement (QI) project
  3. Being on a recruitment panel to help select CNWL staff
  4. Advising on CNWL policies
  5. Taking part in local activities for patients and carers
  6. Helping design or review information leaflets
  7. Attending patient or carer events and workshops 
  8. Getting involved in research

Here is a welcome pack that says a bit more about how we work

Our involvement strategy explains how we are expanding meaningful patient and carer involvement across the Trust. To help achieve this, we have produced some short guides and documents. All of our materials are carefully put together by patients, carers and staff working in partnership because all have equal expertise and all are great assets to the Trust.

If you are a patient, carer or member of the public who would like to get involved, please let us know and we will talk to you and sign you up to our involvement register.

If you are a member of staff who wants advice on involving people, please check Trustnet under involvement or get in touch with us. We can help you identify suitable people and advise you on things like how to set up a patient or carer group, how to arrange payment and how to make involvement meaningful.

You can contact us on: involvement.cnwl@nhs.net or call 020 3317 3735

List of resources

  • Patient, carer and public involvement strategy 2019-2023 which explains how we are increasing partnership working opportunities for staff, patients and carers.
  • Patient and carer skills passport
    • We wanted to find a way for patients, carers and volunteers to record the skills they are using in their involvement with us, whether being on a staff interview panel, attending a course, being part of a committee or volunteering with a service.  A Patient and Carer Involvement Consultant on our team developed this skills passport in collaboration with other patients, carers and staff. We hope people will find this a useful tool to capture their expertise and achievements and help plan future activities.
  • Patient and carer involvement publications. Keep up to date with the latest goings on by checking these out:
    • Summer Magazine made up of contributions from CNWL patients and carers (or ‘Experts by Experience’

If you are in receipt of State Benefits

Anyone in receipt of state benefits needs to stay within their ‘permitted earnings’ set by the DWP (Department of Work and Pensions) when undertaking paid involvement with CNWL.  It is the individual’s responsibility to be aware of this and to declare payments in relation to tax, state benefits and earnings as required. CNWL can signpost people to advice about this.

If you receive benefits and are being paid for an involvement activity, you should:

  1. Read the relevant leaflet for the type of benefit you are on. These can be found below or by contacting the involvement team by emailing involvement.cnwl@nhs.net or calling 0203 317 3735. Where needed, the involvement team can provide you with a standard letter to give to the Job Centre explaining that your involvement activity is not work.
  2. Speak to the Citizen’s Advice Bureau if you need more information. You can call them on 0800 144 8848 or visit their website. ​​​​
  3. If you are still unsure, the involvement team can refer you to more specialist, confidential, independent advice – please get in touch if you need this. 


Individuals are required to notify HM Revenue and Customs of any payment received only if their annual income exceeds their personal income tax allowance at the end of the financial year. Advice can be sought by calling 0345 120 3779 or visiting the taxaid website


Get involved

You can help make a difference to CNWL services


We believe that the best health services are ones that are planned, shaped and delivered by patients, carers and staff working together. People with lived experience of health services understand what works well and what doesn’t, so we want to increase the role they have in the design, delivery and improvement of services. By working together as one, we believe that great things can happen and we hope you will join us on this new journey.


By filling in the form below, you’ll be added to a database of service users and carers that the Trust can contact when involvement opportunities arise. For some roles, there may be an informal application process and we can’t guarantee that everyone who applies will always get a role. But we will try our best to match people to something and we will try to match you to the most appropriate opportunities, based on things like where you live or what kind of services you’ve used. By doing this, both you and staff can get the most out of involvement. All information will be held securely by the central involvement team, and you’ll only be contacted about relevant opportunities and events – we won’t send you ‘spam’!

Want to know more? Contact us 


020 3317 3735


Type of service you have recent experience of (within the last 3 years) - please tick as many as apply Required
Types of involvement activity you have interest in (please tick as many as apply): Required