Milton Keynes Children with Complex Needs Service offers home care and medical supplies for children with complex needs.

The service provides nursing care and support to families of children who have complex medical needs, palliative care needs, including end-of-life care, complex epilepsy, haemoglobinopathies, neurodisability and degenerative conditions, and the management of complex continence issues. A small respite provision is available within the team for the youngest children who are not eligible for social care respite or nursery provision.

The service:

  • Assesses the child’s needs and develops a care package accordingly
  • Liaises with other professionals involved in caring for the child
  • Gives advice and support
  • Reviews and monitors the child’s care on an ongoing basis
  • Provides medicines management
  • Provides a named nurse to coordinate individual children's care and for eligible children provides a telephone on-call service

The team comprises children's nurses, nursery nurses and a service administrator.

The service is available to children who are registered with a Milton Keynes general practitioner (GP) or where there is an agreement in place with a neighbouring clinical commissioning group (CCG) to provide the service.

To use the service, individuals must be aged under 19, and meet one of the following three criteria:

  • Have a severe, unpredictable or complex medical condition, for example sickle cell disease and epilepsy, and/or disability or range of complex medical conditions that indicate a very high use of healthcare services.
  • Have a life-threatening or life-limiting illness where it is expected that they will not reach adulthood.
  • Have a long-term or complex condition which makes them medically unstable and requiring input from a health professional and/or regular hospital admissions.

Or:

  • Attend a special school in Milton Keynes
  • Have complex Epilepsy
  • Sickle Cell Disease and Thalassaemia
  • Require medical supplies
  • Have complex continence needs that require specialist input. 

Children can be referred to the service by a parent, or any professional who feels that the child meets the criteria above.

Once the team has received information about the child, a community paediatric nurse will carry out an initial assessment. If the child is accepted onto the team caseload, a named nurse will visit them at the earliest opportunity.

The nurses are available from 9am to 5pm, Monday to Friday.
A 24-hour out-of-hours service is available for eligible children.

Train: Milton Keynes Central Station

If you need help in a crisis, please do the following

  • Contact the CNWL service looking after you during their office hours
  • If the crisis is during when your service is closed, there are alternative options provided by the NHS found on this page.
  • If you are not already being looked after by CNWL or elsewhere within the NHS, see your GP during normal working hours as they can then refer you to a local service.

Find your closest GP on NHS Choices.